PEGASYS offers helpful materials and services just for patients taking PEGASYS alone or in combination with COPEGUS® (Ribavirin, USP). If you are starting or have started taking PEGASYS therapy, you may find these materials helpful.
- Self-injection video and guide: Provides step-by-step instructions on how to properly inject PEGASYS
- The PEGASYS patient starter kit: This kit contains almost everything patients need to take their first dose of PEGASYS, including a self-injection video and guide, a handbook on hepatitis C and PEGASYS, and other items, such as a nursing support brochure and a sharps container for safe disposal of used syringes. The kit also contains a pregnancy test and important information regarding pregnancy prevention for patients and their partners
- A toll-free telephone number to talk to nurses—24 hours a day, 7 days a week—who will provide guidance throughout your treatment with PEGASYS alone or in combination with COPEGUS. Call 1-877-PEGASYS (1-877-734-2797; Prompt #2)
Many avenues of information and support are available for people with hepatitis, their family, and their friends. The resources listed here will provide a helpful start.
Pegassist®
Pegassist is a comprehensive patient education and support initiative that you can access through Pegassist.com. Pegassist is dedicated to helping you—and those closest to you—know more about hepatitis and its treatment.
Pegassist.com offers a private online hepatitis C support program specifically designed for your use during treatment with PEGASYS. Along with a range of interactive tools, Pegassist.com provides key information about hepatitis C and its treatment with PEGASYS alone or in combination with COPEGUS®.
Pegassist.com features:
Organizations and Government Agencies
Many resources offer information about hepatitis C and related emotional, nutritional, and legal support. Here are some groups you may want to contact. Please note that these resources are provided as a service to patients, not as an endorsement. (Click here for HCV and HIV sites.)
- African American Council on Liver Awareness (AACLA/MCCLD)
4010 Washington Street, Suite 307
Kansas City, Missouri 64111
Phone: 1-.816-767-8472
E-mail: membership@mccld.org
Internet: http://www.mccld.org
- American Liver Foundation
75 Maiden Lane, Suite 603
New York, NY 10038
Phone: (800) GO-LIVER (465-4837)
E-mail: info@liverfoundation.org
Internet: http://www.liverfoundation.org
- Centers for Disease Control and Prevention (CDC)
1600 Clifton Road
Atlanta, GA 30333
Phone: (800) 311-3435
Internet: http://www.cdc.gov
- Hepatitis C Association Inc.
1351 Cooper Road
Scotch Plains, NJ 07076-2844
Phone: (866) 437-4377
Fax: (908) 561-4575
Internet: http://www.hepcassoc.org/
- Hepatitis C Support Project
P.O. Box 427037
San Francisco, CA 94142
Phone: (415) 587-8908
E-mail: alanfranciscus@hcvadvocate.org
Internet: http://www.hcvadvocate.org
- Hepatitis Central
State-by-state index of support groups
Internet: http://hepatitis-central.com/hcv/support/main.html
- Hepatitis Foundation International
504 Blick Drive
Silver Spring, MD 20904-2901
Phone: (800) 891-0707 or (301) 622-4200
Fax: (301) 622-4702
E-mail: hfi@comcast.net
Internet: http://www.hepfi.org
- Hepatitis C Connection
190 East Ninth Avenue
Suite 320
Denver, CO 80203
Phone: (800) 522-HEPC (522-4372) or (303) 860-0800
E-mail: info@hepc-connection.org
Internet: http://www.hepc-connection.org
- Hepatitis C /HIV Ministry Outreach (Hep C-MO)
4010 Washington Street, Suite 307
Kansas City, Missouri 64111
National,Toll-free Hep C Helpline: 888-436-HEPC (4372)
Office: 1-816-767-8472
E-mail: hcvinfo@hepcmo.org
Internet: http://www.hepcmo.org
- Latino Organization for Liver Awareness (LOLA)
P.O. Box 842
Throggs Neck Station
Bronx, NY 10465
Phone: (888) 367-LOLA (367-5652) or (718) 892-8697
Fax: (718) 918-0527
Internet: http://www.lola-national.org/
- National AIDS Treatment Advocacy Project (NATAP)
580 Broadway, Suite 1010
New York, NY 10012
Phone: (888) 26-NATAP (266-2827) or (212) 219-0106
Fax: (212) 219-8473
E-mail: info@natap.org
Internet: http://www.natap.org
- National Digestive Disease Information Clearinghouse (NDDIC)
2 Information Way
Bethesda, MD 20892-3570
Phone: (800) 891-5389 or (301) 654-3810
Fax: (703) 738-4929
E-mail: nddic@info.niddk.nih.gov
Internet: http://www.digestive.niddk.nih.gov
- National Institutes of Health's National Institute of Diabetes & Digestive & Kidney Disorders (NIDDK)
Building 31, Room 9A04 Center Drive, MSC 2560
Bethesda, MD 20892-2560
Phone: (800) 891-5389 or (301) 496-3583
Internet: http://digestive.niddk.nih.gov/ddiseases/pubs/hepc_ez/
- United Network for Organ Sharing
P.O. Box 2484
Richmond, VA 23218
Phone: (888) 894-6361
Fax: (804) 782-4817
Internet: http://www.unos.org/
Related Links
General information about hepatitis A, hepatitis B, and hepatitis C is available at:
Additional information about the hepatitis C virus, how it is spread, diagnosis, and how to avoid transmission is available from the following organizations:
Information about general health management for people with hepatitis C is available via the following links:
New privacy laws about medical information and medical records can be found at:
Support Groups
For comprehensive lists of support groups for people with hepatitis C, their family members, and their friends, visit:
If you are seeking assistance with an alcohol or drug problem, Alcoholics Anonymous or Narcotics Anonymous can help. Online, you can locate support groups in your area.
Rules and regulations have been established regarding medical conditions and the workplace. Know your rights. Some information about federal labor laws is required to be posted in every workplace. For additional details, the following government information can be accessed directly:
Information about coinfection with HCV and HIV:
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